Thursday, October 19, 2017

Why we created this blog?

Almost for 4 years Masha has been with us, and all this time we still continue to look for ways to help her to master such simple things for someone, but not for her: walking, talking, chewing and holding a pencil... This blog is one more way. It is the path to the hearts of friends and strangers with begging for help. So far, we managed on our own. But the cost of technical devices (stroller, verticalizer, armchair, orthoses, special costumes, etc.) and intensive rehabilitation courses are becoming more and more tangible.

Therefore, we ask those who can help - help Masha do the first step!

Monday, October 16, 2017

Here we go!

For three and a half years Masha got used to and realized that physical exercises are a necessity and a part of her life. With age, she also became hardy and no longer falls asleep in half an hour of classes, but can withstand two-hour intensive therapy. This year we visited the next rehabilitation center, in Warsaw, the center "Olinek". There, our child slowly but surely began to try to take the first steps with the help of a therapist. Experts say that it is necessary to continue studies to consolidate the effect and, perhaps, in a few years Masha will be able to move with the help of walkers.



Of course, walking is just one of the tops to which we climb. In intensive studies, Masha works both on sleight of hand, speech and food intake.

Sunday, October 15, 2017

Day by day

Particular form of cerebral palsy, indeed, as promised clever books, is difficult to be physically rehabilitated. But it's much easier for us to go through habilitation and socialization, because Masha has attended a kindergarten since she was 3 years old.



Of course, this is an unusual garden for unusual children, but integration sessions with healthy children are also conducted regularly. In the kindergarten Masha has daily individual and group lessons. She happily go there every morning.


In addition to physical rehabilitation, speech therapy, sensory integration, children are engaged in creativity: modeling, drawing and handicrafts. Unfortunately, this is obtained from Masha only with the help of "hand in hand". But she tries very hard.

Saturday, October 14, 2017

Before and after

When Masha was born, we did not hear her voice. She gave us a weak and plaintive cry only on the day of discharge from the hospital. And since then, every day, the power of her vocal chords has grown, until it became obvious that the silence in our house is now an infrequent guest. The forces inherent in nature were awakened.



Thursday, October 12, 2017

Memories. 3%

Masha was born on December 23, 2013. Her appearance at the eve of the New Year holidays was to be the most significant and long-awaited gift for our entire family.


But, alas, the New Year holidays from 2013 every year in memory of the pain and joylessness of the experience. Although life goes on and time heals, the soul and mind are subdued, and we adapt ...

Welcome!

Welcome and let's get acquainted. My name is Natalia, I'm Masha's mom, and this blog will be about her. Masha is 3.5 years old and has cerebral palsy (hyperkinetic form/athetosis, secondary microcephaly).



Our daughter was supposed to be a healthy child, but at the last minutes of birth something went wrong, and as a result she was born in the hardest condition of acute asphyxia one step to death. Thanks to resuscitation, her heart began to beat again, but the brain managed to suffer a lot, in particular - the parts responsible for coordination, purposeful movements.

Masha is a smiling and cheerful child who understands and loves to learn a lot. But physically she cannot do anything without help: to sit, eat, walk, and also talk - but she talks with a look and mimicry. Almost every day since birth, Masha attends the classes to improve her ability to control a body.

We want to do everything for Masha to be able to control over her body and the enjoyment of her own movements. But, unfortunately, the road to this goal is much longer and more difficult than we could imagine. I will share this path on the pages of this blog.